We don't go on trips, vacations.
We don't go to Disneyland, we don't go to the Polar Express for Christmas, or take any trip for any sort of "fun" that lasts any longer than a day or two.
Well trips to spend a week in and out of a hospital. We disguise it with a few little jaunts to fun things around the city we are in - but the truth is - we are only there to see the doctors in that hospital.
This is our life.
And sometimes I get very jealous. Very jealous.
We put Aria on Prozac - because the intense anxiety and bouts of depression were just too much for an 8 year old to continue to go through. Also we knew that if we continued to allow it to go on it would spiral upwards as she approached her teenage years.
And well, let me be honest here - I decided to put her on it for one reason - because if I didn't - the person who would die in this house was not Alex, or Aria - it was me.
I couldn't work 30 hours a week, be a full time student, manage a medically complex child's medical care and have a child who would cry at every moment possible. I was having chest pains.
Happily though I can report that the Prozac has done amazing for Aria. She calls it her "emotion pill". She says it let's her not have to feel so much. Her Mommy understands - she feels too much too.
I hop on social media to see family and friends enjoying their Christmastime - and all I can think is "ugh - gotta work another 10 hour day today".
I see their children smiling and having fun. I'm happy for them. And honestly, really truly honestly - I'm glad they don't have to live like we do. I would not wish this intense stress and pressure on anyone.
It is the cards I was dealt. That has to be okay. I have to work towards that being okay. It is a daily struggle.
I am still learning. I am still growing. I am still teaching my girls to be humble and resilient and to be content with what they have.
I lean on our Lord. I lean on our Heavenly Father to guide me. I fail daily.
I think what I am trying to say here is - stop comparing yourself. Someone once said comparison is the thief of joy. That person was right. When I constantly compare my life to others around me, I lose all joy I have in my heart.
No this life is not easy. I made my choices and vows and I will honor those vows - because that's what our Heavenly Father wants us to do.
So now besides having a child with Heterotaxy, CHD, Abernethy Malformation, a bad liver, spikes in her ammonia levels, scoilosis, an upcoming major surgery - I have another child with anxiety, PTSD and depression, who at 8 takes 10mg of Prozac a day.
Some people would look at this and think FAILURE.....I look at it and think "Whew buddy, we got some work ahead of us!"
I'm probably not going to live to see 90, I will probably have to have triple bypass by my mid 50s, and start metformin for type 2 diabetes by my mid 40s - but hell - did I live. I lived. We all lived.
HAHA and as I type this a gigantic piece of one of my teeth just cracked off.
But no rest for the wicked - pediatrician appointment at 11 for Aria and 2 o'clock ortho appointment for Alex today.
Better go put my war paint on.